About Us

Meet Our Family

We are parents to a very special little boy named Evan. He has what we call "designer genes;" he is one of only a handful of people worldwide with his particular genetic condition, RPL10 related disorder. 


We have spent a lot of time in the hospital and at doctors' offices throughout his little life, and we've realized that no one can navigate special needs parenting alone. That is why we've created Everyday Evan. We want to help support families going through medically complex journeys like ours.


We are parents to a very special little boy named Evan. He has what we call "designer genes;" he is one of only a handful of people worldwide with his particular genetic condition, RPL10 related disorder. 


We have spent a lot of time in the hospital and at doctors' offices throughout his little life, and we've realized that no one can navigate special needs parenting alone. That is why we've created Everyday Evan. We want to help support families going through medically complex journeys like ours.


We are parents to a very special little boy named Evan. He has what we call "designer genes;" he is one of only a handful of people worldwide with his particular genetic condition, RPL10 related disorder. 


We have spent a lot of time in the hospital and at doctors' offices throughout his little life, and we've realized that no one can navigate special needs parenting alone. That is why we've created Everyday Evan. We want to help support families going through medically complex journeys like ours.


We have spent a lot of time in the hospital and at doctors' offices throughout his little life, and we've realized that no one can navigate special needs parenting alone. That is why we've created Everyday Evan. We want to help support families going through medically complex journeys like ours.

The Beginning

My pregnancy with Evan was tough due to morning sickness that wouldn't quit and eventually preeclampsia that led to his early arrival. When we were 28 weeks pregnant, our routine ultrasound showed some "abnormalities" that warranted us receiving additional testing and visits with the high risk pregnancy doctors in our area. 


We were terrified. But we wanted to trust in Jesus. I remember sitting in church on Easter that year just weeping as the song "Reckless Love" surrounded me. God was telling me, "Brooke, do not fear. I love this boy more than you ever could. I have gone to the ends of the Earth for him." That hope still sustains me. 

Our Hospital Journey

We spent our first 87 with Evan in the NICU. In the six months after his discharge, we were back on the pediatric floor five times for respiratory distress, surgeries, or seizures. Being in and out of the hospital so much with your child is exhausting and heartbreaking. As Evan's mama, I felt like I should be able to give him everything he needed, and when I couldn't, it almost destroyed me. But God is good. He has been teaching me, through Evan's medical journey, that I am not in control. I never was. I never will be. I am not meant to be. 

Where we are now

To quote K.J. Ramsey, "This isn't a before and after story." We are still in the trenches of learning to parent in the unexpected. We are still making mistakes, learning, and growing into the people God created us to be. We are not perfect. We don't get it right all the time. We struggle. But we love our boy, and we love our God. We will keep fighting for Evan to have the best life possible. We will keep fighting to make the world a better place for him. We will keep fighting to encourage others along the way with the Truth that we know in the hope of Christ.

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